RESEARCH
RESEARCH OPPORTUNITIES
The Cerebral Palsy Canada Network empowers families by providing accessible, credible information on new research discoveries and opportunities. Find information on research opportunities, rehabilitation, new treatments, medical interventions and policies here.
Personalized Parenting Support for Families of Children with Neurodevelopmental Disabilities
Children with brain-based developmental disorders often face emotional and behavioural difficulties. These challenges can negatively impact their quality of life and the quality of life of their families. Drs. Patrick McGrath (Centre for Research in Family Health) and Lucy Lach (McGill University) are working together as part of the CHILD-BRIGHT Network to create an online parenting program to improve the lives of children with neurodevelopmental disorders and their families. These disabilities include:
severe learning disability, Epilepsy, Global Development Delay, Autism, Cerebral Palsy, Down Syndrome or any other diagnosis that affects how your child gets around, communicates their ideas, processes what they hear, or remembers things.
The Strongest Families Neurodevelopmental Program is being developed to deliver evidence-based care to families in the comfort of their own homes. Our program includes 11 skill-based education sessions, weekly telephone support from trained coaches, video/audio skill demonstrations, and a Parent-to-Parent online support group. The creation of our program has involved parents of children with neurodevelopmental disabilities as expert advisors in all phases of the project, ensuring program content is relevant to families like their own.
RESEARCH Resource & Connection
CanChild
A research centre dedicated to generating knowledge & transforming lives of children and youth with developmental conditions and their families.
CanChild is the hub of an academic network of international scientists who conduct applied clinical and health services research. CanChild research efforts focus on children and youth with disabilities and their families.
Parents Partnering in Research
PPR Facebook Group
In June 2014, this private Facebook group was launched with the goal of exploring social media as a platform to enhance parent-researcher partnerships and encourage knowledge exchange. The group includes researchers, physicians, parents, siblings, patients, trainees and students who collaborate and engage throughout many discussions on the topic of health and childhood disability.
If you are a parent or researcher interested in joining the PPR Facebook group, please contact the group moderator Rachel Martens.
F-Words in Childhood Disability
The ‘F-words’ in Childhood Disability, developed by Drs. Rosenbaum and Gorter (2012), provide a holistic strengths-based approach to health and childhood disability. The CanChild ‘F-words’ research team continuously works to partner with patients and families around the world to develop ‘F-words’ based tools and disseminate and implement these ideas to have a positive impact on children living with disabilities and chronic conditions and their families.
2020 - 2025 Strategic Plan
Strategic Plan 2020-2025
The five-year CanChild Strategic Plan reflects our hopes for the future state of CanChild: a centre with a shared purpose, where innovative and impactful child health research is at the heart of what we do, and a centre that is recognized internationally for an environment that cultivates diversity and inclusion, collaboration and partnerships.
CHILD-BRIGHT NETWORK
In Canada, as many as 850,000 children under the age of 14 are living with a brain-based developmental disability and face life-long challenges with mobility, language, learning, socialization, and/or self-care that impact the quality of their lives.
At CHILD-BRIGHT, patients, families, researchers, clinicians, policy makers and other key stakeholders work together to improve health care systems, practices, and knowledge to ensure better outcomes for these children and their families.
CHILDHOOD DISABILITY LINK
The Childhood Disability LINK website aims to Link Information and New Knowledge to families and service providers to enhance the well-being and quality of life of children with disabilities and their families. The Childhood Disability LINK website is focused on: providing evidence-based information, and connecting families to interesting resources and support networks.
CP-NET
The Childhood Cerebral Palsy Integrated Neuroscience Discovery Network (CP-NET) is an exciting initiative funded by the Ontario Brain Institute. The program is designed to improve our understanding of cerebral palsy (CP) and accelerate the development of new treatments. This unique opportunity will allow us to better understand the mysteries around CP. This initiative will gather information about children with CP and their families from across Ontario. The ultimate goal is to improve the lives of people with CP and their families.
KIDS BRAIN HEALTH NETWORK
Together, we are making a real difference in the lives of children with neurodevelopmental disabilities and their families.
Kids Brain Health Network is making early diagnosis possible, researching effective new treatments, and improving support for families across Canada. We share expertise, mobilize knowledge, and
put research results into practice.
Kids Brain Health Network is making early diagnosis possible,
researching effective new treatments, and improving support for
families across Canada. We share expertise, mobilize knowledge, and
put research results into practice.